Author name: Jessica Jones

Coping with Infertility

Why Self-Care Isn’t What I Thought It Was

I always thought self-care was something that other people did. Rich people to be precise. Actually rich women, who didn’t work and spent their days out to lunch or meeting friends for coffee. Self-care was a spa day, or an afternoon at the salon getting nails and hair done while clinking wine glasses with other rich, non-working women. I didn’t have time for all that. After our third in vitro fertilization (IVF) cycle failed and we were approaching the third anniversary of my brother’s death, I started to spiral downwards. I recognized the signs. I knew I was heading for black and I wanted to learn how I could help myself. It began with self-care—and not the spa day type. It actually began with rest. My mind and body were broken and the sooner I realized this, the sooner I could accept that this was going to be a slow process. Self-care isn’t something that you do when you have time or money. I worked hard on myself and I read a lot and learn about mental health. Along the way, I learned some important lessons about self-care. Self-care isn’t something that you do when you have time or money. Self-care isn’t for the elite or the privileged. Self-care is an essential part of my life that is critical for my survival. I discovered that self-care is about preserving and nourishing: My body My relationships The way I see the world The way I see myself Proper Rest Self-care means going to bed when I feel tired, even if that’s at 8 pm sometimes. Rest is important for my soul. Grief and never-ending IVF cycles cause extreme exhaustion and fatigue. The endless list of drugs you take while battling your own demons means only one thing— you need time to recover and repair. Surrounding Myself With Positive Influences Self-care means not being in the presence of toxic people. Those who can’t or won’t understand our journey and say thoughtless or hurtful things. It is my duty to protect my heart and therefore I must also protect my mind. This journey I am on is brutal, there is no room for other people’s judgments or criticisms. Self-care means putting myself first in a way I never thought I would. Prioritizing My Own Needs Self-care means putting myself first in a way I never thought I would. It means saying no to things —and not just the obvious stuff like baby showers or christenings—but anything that I either don’t have the energy for or that may harm me in some way. I don’t advocate being a recluse, I recognize the importance of friendships and socializing, but it must be on your own terms. The same goes for how I spend my time alone. Do I need to put another re-run of Friends on when I get in from work, or shall I leave the TV off and maybe just read for 30 minutes. Neither is wrong and neither is right, it’s whichever is going to make me feel better at the time—and a re-run of Friends can certainly make me laugh—but the peace and serenity I get from sitting quietly with a book can be equally as healing. Daily Meditation Self-care for me is also about meditation and yoga. Spending some time with myself one-on-one helps me learn about what works to keep my body and mind relaxed and serene. We all need coping mechanisms on our journey and for me, I have found that when things get crazy, I can center myself with mediation. When I think I don’t have time to meditate today, that’s when I know I need to mediate above everything else. Ten minutes with my meditation app can change my entire day if I allow it. Learning to recognize when my anxiety levels are high and knowing that if I simply sit with myself for a short period, I can breathe myself back to a place of balance that has been one of the most important lessons. I don’t have to spiral along with my anxious thoughts like a puppy chasing its tail. Being More Mindful About Food Self-care then turned to looking after myself physically. Eating well and drinking plenty of water. I know, that for me, caffeine and alcohol do not help. Nor does vast amounts of sugar. It may sound like I’m living some bare minimum life, but that is not the case. I still have treats and I definitely enjoy my food. But I don’t trough mounds of chocolate and cake to make myself feel better anymore—the sugar crash is just not worth it. Moving My Body Self-care became about being healthy in both mind and body. I began taking a small lunchtime walk each day, especially on workdays. The right/left motion helps me to process thoughts and clear my head. Being outside in the fresh air helps to gain perspective and remember that there is a big wide world out there. Getting a little bit of gentle exercise releases endorphins and contributes to making you feel better about yourself overall. Enjoying Rewards Self-care then turned to treats. I enjoy date nights with my husband out at the movies or dinner out. Infertility robs you of so much that it’s easy to get lost in it and as a result, relationships suffer. Luckily, we recognized this and put some time aside to spend together away from grief and injections and to remember why we got married and why we like spending time together. This all sounds easy. For me, this is a culmination of months and months of hard work, trial and error, of getting it wrong and starting again. But it is worth the investment to regain some control over the life you have been dealt and the path you have to walk. Self-care has always been about figuring out what works for you. I practice self-care every day. I don’t know where I’d be without it…and not once has it

Coping with Infertility

7 Ways the Two-Week Wait Messes With Your Mind

Anyone who has been through infertility treatments will know that by the time the two-week wait comes around you are mostly a headcase. It’s the designated black hole between embryo transfer and pregnancy test where you are waiting to see if all your treatment has been worth it and you are in fact pregnant (or not). You also know that there is no shortage of articles on how to manage the two-week wait (for example 10 Ways to Survive the Two Week Wait After Infertility Treatment). After having endured weeks of injections, the roller coaster of emotions and various procedures, you’ve fought your way bleeding and bruised to this point where the most prevailing advice is to now to relax and chill out. Ha! This is a highly unlikely state of mind based on the four times I have personally waited it out post-treatment. And why? Because the two-week wait is essentially one giant mindf**k (to be technical) and here is why: 1. There is nothing that you can do. You are not actively working towards your goal. There are myths and old wives tales about helping embryo implantation along, but medically you have done everything you can. Even the professionals cannot tell you why some embryos implant and some do not. This can leave you feeling lost and out of control. 2. You have no idea of what’s going on—if anything actually is. While you have nothing do besides wait, you have no idea what is going on. From the point of transfer, you do not know if that collection of cells is still alive and dividing or has sadly arrested development. Your brain constantly ricochets between feeling super positive and depressingly despondent. The mental rollercoaster of this two weeks of limbo cannot be underestimated—in some ways this waiting period is the hardest part of the whole treatment cycle and it is a challenge to stay sane when so much is unknown. 3. From a busy schedule of appointments to…nothing. After weeks of appointments with scans and blood tests and regular meetings with your clinical team, the embryo transfer is usually your last contact before you are let loose on your two-week wait. If I am being honest, this can make you feel a little abandoned. 4. Seeking comfort might not actually be comforting. You want to connect with people who understand and so you reach out to your fellow infertility warriors but every forum and support group is full of women on their two-week wait discussing each symptom and Googling it all. It will drive you absolutely bonkers if you let it. In fact, it might melt your already fried brain. 5. The progesterone support can mimic early pregnancy symptoms. If the forums and support groups weren’t enough to make you overthink every twinge, the daily intake of progesterone to support your budding embryo also mimics every early pregnancy symptom. The tummy cramps, the backache, the sore chest, the exhaustion. Not only is this not much fun, but also there’s absolutely no way of knowing whether any of these are from your little embryo or the drugs. Talk about mental torture. 6. There’s no clear direction on what you can or can’t do. There doesn’t seem to be a clear consensus on just what the ideal post-transfer regiment includes. Some clinics give you a sick note for you to stay off work, others suggest you carry on as normal. Some professionals believe exercise should be avoided, whereas other preach light to moderate exertion. Trying to decipher what you should and shouldn’t do can be a mental minefield and most of all, the pressure to get it right can be all-consuming. No pressure or anything, but it feels like everything is riding on this one pee stick. 7. Basically, your entire life has led up to this point. No pressure or anything, but it feels like everything is riding on this one pee stick; the months of preparation, the years of heartache and all of your dreams for the future. It all comes down to this one moment in time you are now waiting 14 days for. And the one thing that everyone seems to agree on is to stay stress-free and relaxed while the days tick past at an alarmingly slow rate. Totally possible. So whilst the aim is to try to remain stress-free and relaxed through this mindf**kery, if the culmination of it all is more like a pressure cooker inside your brain, that just might be normal too. The only thing you want is either a clue as to what’s going on in your uterus or some way to speed up time and unfortunately, there is no website to help you do either. How anyone manages to negotiate this time period is an absolute wonder. Want to know one good thing about the two-week wait? By definition, it must come to an end.

Coping with Infertility

What My Infertility and Her Pregnancy Did to Our Friendship

My husband and I have been trying to conceive for five long years with a diagnosis of male factor infertility in the form of mild Cystic Fibrosis (Further reading: Our Experience with Cystic Fibrosis & Male Infertility.) We had been through two cycles of in vitro fertilization (IVF), both of which failed, and were waiting to start our third when my best friend told me she was pregnant. I didn’t expect it. We knew immediately that my infertility and her pregnancy were not going to be compatible. Because of this, we haven’t seen each other in a while and I am awaiting news of the birth. This has been something that I have been dreading and looking forward to in equal measures. Dreading because I’m worried about how it will make me feel and looking forward to it so that I can see my best friend again. We didn’t want to damage our friendship and so made some decisions to help make this possible. This is how we prioritized my feelings to protect our friendship. My Fertility Counselor’s Concerns Months ago when I told my fertility counselor that my best friend was pregnant she was immediately sad for me. She told me that most friendships do not survive this scenario and it’s just too hard for someone going through fertility treatment to cope with a pregnant best friend. I came out of that session hoping she was wrong – I didn’t want to lose my best friend, not now, not after everything. But She’s Been my Best Friend for More Than 35 Years I have known Sally since I was 3 and we have pretty much been best friends ever since. I don’t think there’s a human emotion we haven’t been through together. We are incredibly close and we talk every day; she’s like the sister I never had. When my brother was killed she came to see me every day for two months solid. It didn’t matter where I was, she would find me. She could have worked all day long and would still find me at 9:30 at night, just to see me for five minutes. We walked and talked about life and death, or we sat in silence while she held my hand. When everyone else had stopped visiting and assumed we were ‘getting over it’ she knew better and still came. I knew she was there for me, no matter what and I can never repay her that kindness. I know how lucky I am to have a friendship like this in my life and there was no way I was going to let such a thing come between us. How we Managed Infertility and Pregnancy Together The first thing I did was tell Sally what my counselor had said. We agreed that no matter what we would make this work. No matter how hard it got we would keep talking and keep being mindful of each other’s feelings. And that is exactly what we’ve done. We talk about everything, including the hard stuff and we don’t get cross or annoyed if one says something that the other one found upsetting. We let it go and recognize the tricky path we are trying to walk together. There are obviously huge emotions involved because she has something that I have been fighting for five years. But for her, she is also going through a huge life-changing event that is both amazing and also painful knowing that her best friend is struggling with it and hurting. Not Seeing the Bump It was actually Sally who first suggested that once she started showing we would not physically see each other anymore. This was a tough decision. It has been six months since I laid eyes on her and while we still text every day, this has been the hardest part. We still believe it was the right thing to do; seeing women with baby bumps is just so difficult when you’re on your own infertility journey and can create envy. Neither of us wanted that and so we stuck to this decision, no matter how challenging. What I Missed out on (For All the Right Reasons) It has been hard missing out on the pregnancy-side of her life. If I wasn’t dealing with infertility, we would have shopped for clothes and toys and things together, we would have laughed about baby names over decaffeinated coffees. But this is not something I could do; it was just too hard. It caused me too much pain and she refused to be the source of that pain for me. We have managed to stay close, circumnavigating the pregnancy as much as we could. Of course, if there was something she felt I needed to know, she would tell me gently and sensitively. I am sad that there are things I have missed out on over the past nine months, but this has been the right decision and was essential to the survival of our friendship. How I Plan to Meet the Baby I’m hoping to see her and the baby sometime soon and while I absolutely can’t wait – I already know it will be very emotional. It will be hard seeing such a tiny little baby while being desperate for one of my own, but I read articles and blogs about this that all suggest seeing the baby as soon as possible. This way the baby becomes a person with its own identity and character rather than ‘the thing’ you want most. I’m really proud of how we have handled this situation and of how aware we both are of each other’s feelings, but it has not been easy. We are a testament to the fact that despite what most people say, you can maintain a friendship through pregnancy and infertility if you are prepared to work at it and be mindful. This situation could have easily destroyed our friendship. We could have let each other drift away and in

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